Vagal Schwannoma
  • Home
  • SURVEY
  • What is it?
  • Symptoms
  • Treatment Options
  • Vocal Outcomes from Surgery
  • Mapping us out!
  • Looking for a Doctor?
  • Questionnaire
  • Share your story
  • My Journey Diary
  • WebSites
  • Newer Info
  • Contact
  • Story from Bob
  • SURVEY

Yesterday was a not so great day

2/16/2011

1 Comment

 
Can't all be good I know.  But the side my tumour is on is very sore and tender yesterday and progressed through the day, all night and into this morning.  I was hoping it was a temporary thing.  Feels swollen in there as I feel it when I swallow and my ear is pinging with pain inside and behind it.  My neck and head are tender all on that side.
I know there will up and down days, and this is a down.  Not bad really since the first initial pain was at the beginning and then nothing till now. 
I'll see if I can come up with info on the internet regarding post-CK symptoms and when they occur.  I do know things can occur at various stages, just don't remember when or anything.  I am not even sure now that what I read was regarding CK radiation or not either.
I am sort of aware that CK has been used many many times on different tumours and cancers but a vagal schwannoma is more rare.  I would venture to say it has been used on prolly 25-30 patients only through out the world.  Give or take 10 patients.  That is not alot of people to gain statistics and symptoms from.  However, at least it's something and I happen to know two of them through facebook so will ask them questions.
Come to think of it, this site is really the only site geared towards vagal schwannomas.  This held true at least 1 1/2 yrs ago when I first made it.  Who knows now, but there was a huge lack of info for vagal schwannomas, their symptoms and support.  The facebook page I have made has brought a bunch of us together and it is a god send for lots of the newbies as it was for me when I first encountered others with a V.S.
Back to this pain... Sometimes tho, once you're out of the woods, it's hard to remember back to when you didn't feel good. All that is on your mind is your present state and how good you feel now.  So asking others about thier recovery may not trigger these memories unless they wrote them down.  Even when I read back on my diary's I think, WoW, I forgot about this and that.  I did have an entire years diary on here before the CK, but I copied it onto a Word document and erased it from here.  Decided to start right from the beginning of my treatment.
Well, my present state is... I feel awful.  :P
It is hump week tho so let's get at it and finish off this week quickly!!!
Have a great one :)
1 Comment
cheryl
2/17/2011 09:24:48 pm

Hope you are feeling better Hunn. I still read this quite frequently and just want you to know - We are just a phone call away if there is ANYTHING we can do....
LOTS of Luv to YOU!!!!
OXOXOXOXOXOXO

Reply



Leave a Reply.

    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

    Picture
    Picture
    Picture
    Picture
    Picture
    Picture
    Picture

    Needed some humour here! 

    Picture
    Picture

    Archives

    April 2019
    October 2016
    August 2016
    December 2015
    July 2015
    March 2015
    October 2014
    September 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    November 2013
    October 2013
    April 2013
    February 2013
    January 2013
    October 2012
    July 2012
    June 2012
    May 2012
    February 2012
    January 2012
    October 2011
    June 2011
    May 2011
    April 2011
    March 2011
    February 2011
    January 2011
    December 2010
    November 2010

    Categories

    All
    Neurilemoma
    Schwannoma
    Vagal
    Vagus

    RSS Feed

Powered by Create your own unique website with customizable templates.