Can't all be good I know. But the side my tumour is on is very sore and tender yesterday and progressed through the day, all night and into this morning. I was hoping it was a temporary thing. Feels swollen in there as I feel it when I swallow and my ear is pinging with pain inside and behind it. My neck and head are tender all on that side.
I know there will up and down days, and this is a down. Not bad really since the first initial pain was at the beginning and then nothing till now.
I'll see if I can come up with info on the internet regarding post-CK symptoms and when they occur. I do know things can occur at various stages, just don't remember when or anything. I am not even sure now that what I read was regarding CK radiation or not either.
I am sort of aware that CK has been used many many times on different tumours and cancers but a vagal schwannoma is more rare. I would venture to say it has been used on prolly 25-30 patients only through out the world. Give or take 10 patients. That is not alot of people to gain statistics and symptoms from. However, at least it's something and I happen to know two of them through facebook so will ask them questions.
Come to think of it, this site is really the only site geared towards vagal schwannomas. This held true at least 1 1/2 yrs ago when I first made it. Who knows now, but there was a huge lack of info for vagal schwannomas, their symptoms and support. The facebook page I have made has brought a bunch of us together and it is a god send for lots of the newbies as it was for me when I first encountered others with a V.S.
Back to this pain... Sometimes tho, once you're out of the woods, it's hard to remember back to when you didn't feel good. All that is on your mind is your present state and how good you feel now. So asking others about thier recovery may not trigger these memories unless they wrote them down. Even when I read back on my diary's I think, WoW, I forgot about this and that. I did have an entire years diary on here before the CK, but I copied it onto a Word document and erased it from here. Decided to start right from the beginning of my treatment.
Well, my present state is... I feel awful. :P
It is hump week tho so let's get at it and finish off this week quickly!!!
Have a great one :)
I know there will up and down days, and this is a down. Not bad really since the first initial pain was at the beginning and then nothing till now.
I'll see if I can come up with info on the internet regarding post-CK symptoms and when they occur. I do know things can occur at various stages, just don't remember when or anything. I am not even sure now that what I read was regarding CK radiation or not either.
I am sort of aware that CK has been used many many times on different tumours and cancers but a vagal schwannoma is more rare. I would venture to say it has been used on prolly 25-30 patients only through out the world. Give or take 10 patients. That is not alot of people to gain statistics and symptoms from. However, at least it's something and I happen to know two of them through facebook so will ask them questions.
Come to think of it, this site is really the only site geared towards vagal schwannomas. This held true at least 1 1/2 yrs ago when I first made it. Who knows now, but there was a huge lack of info for vagal schwannomas, their symptoms and support. The facebook page I have made has brought a bunch of us together and it is a god send for lots of the newbies as it was for me when I first encountered others with a V.S.
Back to this pain... Sometimes tho, once you're out of the woods, it's hard to remember back to when you didn't feel good. All that is on your mind is your present state and how good you feel now. So asking others about thier recovery may not trigger these memories unless they wrote them down. Even when I read back on my diary's I think, WoW, I forgot about this and that. I did have an entire years diary on here before the CK, but I copied it onto a Word document and erased it from here. Decided to start right from the beginning of my treatment.
Well, my present state is... I feel awful. :P
It is hump week tho so let's get at it and finish off this week quickly!!!
Have a great one :)
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