Vagal Schwannoma
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Long live CyberKnife!

6/24/2011

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So far so good.  Went to Ottawa for my MRI and appt with oncologist.  Say's the results are "favourable".  He can't say dead.  But when I asked him he said that it does infact look dead but he has to say it as "favourable".  Still has some little halo around the outside of it.  It has not shrunk tho and that is ok.  I was still getting symptoms because of the fact it is still 3 inches up there in my little head.  With such an amazing large brain to contend with for space, there has to be some issues along the way.
Very amazing story of a 12 yr old boy that had an operation on his vagal schwannoma.  To have a tumour like this so young, I think he is the youngest that I have come in contact with so far.  His mom just joined the vagal schwannoma Facebook page.  Wow, I could not actually comprehend such a thing happening to my son.  Such a thing happening to such a young boy.  It tore me up.  Yet, I am also calmed by the fact he is so young and strong he will bounce back so well.  His mom must be so brave.  Kudos to the family and they will be in my thoughts every single hour of the day.
I am attending the Tragically Hip concert here in Bobcaygeon.  Over 25,000 people coming from everywhere for this outdoor in a field concert.  It will be just CRAZY!  We have a 70 seater bus rented coming to the house to pick us up and it will be full!  Will be insane.  If you don't hear from me ever again it will mean I am a crushed concert goer statistic.  lol

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Boat Cruise

6/6/2011

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What an amazing time on the boat cruise!!  25 friends went along and 16 of them started at our place in a bus we all rented.  LOTS of dancing, great music and the weather turned out awesome.  Came home after to a campfire and fireworks in our yard.  Great night!
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Facebook is funny and good times are priceless

6/2/2011

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Why is facebook funny.  Well, I just watched "Social Network" which is a story about the guy who created Facebook.  At one point he got drunk and blogged on the internet about his X and once he pressed, SEND,, the rest is history. 
Well, I have done the drinky, facebook thing.  Commenting peoples pictures.  Aggressively deleting people from my friends list.  Creating a Status that I can't beleive I even wrote and posting pictures of our good times as they are happening.  Then.... the day after comes along.  I start getting, "Why did you delete me from your facebook?".. lol.. obviously it's cause I don't have the guts to do it sober.  Great thing about Facebook is you don't even have to respond.  Anyway, I'm thinking they should have a breathalyzer attached to all internet accessing machines and if you blow over,, you are locked out.  Hahaha  Should I "Shark Tank" that one?
Next; Good times are priceless.  Well, on that note, I won't be able to comment fully on that until Saturday night.  I have 21 amazing friends going on a boat cruise/dinner/blues band dance... We have rented a bus to pick us all up and my one friends got us a great deal on the bus.  It's only a 12 minute drive to the boat cruise but drinking and driving is a huge NO NO in my books.  I am sure it will be a priceless night had by all.  
Lastly, a newbie to the world of schwammies wrote me today.  Discussing how she has a total new lease and look on life.  I could not agree more.  She discussed how riding on her jetski has a total new meaning.  Way back when I was first diagnosed (2 yrs ago) I took a ride on a friends jet ski.  I was diagnosed firstly with a cancerous tumour so at the time I thought I had about 2-3 yrs to live even after the treatment.  "Angels on the Moon" (link to the right) is a song that was constantly on my mind as I would drive in my car endlessly with no thought of where I was going.  Well, that day on the lake, the water so smooth like ice, the air still, the sun shining through a small haze across the water.  I was in heaven.  I still fight back the tears when I think about that moment on the lake knowing I may not be there 2 yrs from then but loving the life I had right then.
I know this is a long post, but every time I get a newbie write me it brings back the anguish and fear I had when I was first diagnosed and how alone I felt and scared but had to be brave for everyone else.  I only wish I had a way to ease their fear too....
Have a listen to the song... cause even at one point I looked at my boyfriend and said "Tell me the truth,, is there something going on with me that you know and the doctors know but no one is telling me???  I need to know
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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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