Vagal Schwannoma
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What a WoW of a movie

5/20/2012

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Cannot explain my emotions enough but to say, I cried through an entire movie for the first time in my life. It was called “50/50”.  It took a malignant schwannoma of the spine and turned it into a comedy/drama movie.  So absolutely raw with reality, yet comical at the same time.  It is a MUST SEE.  It ran through every turn of our adventure from finding out about the tumour, to the tunnel vision we experience for weeks afterwards.  The visits to the doctors to the MRI’s.  The involvement of family and friends.  Even the opportunities we give our loved ones to bow out of our lives and move on with theirs.  What a WOW movie!
It made me so especially thankful for Naz.  He has been my rock.  He has seen me through all of it.  Been to every doctors appointment.  Stayed when he didn’t have to.  Loved when I thought I could not love back.  It made me so grateful to a particular friend of mine.  For the laughs, the phone calls and every offer to take me to the doctor appointments.  Sue, Thank you!

Seeing this movie, has absolutely humbled me and made me re-live every moment and be thankful for where I am today and who has carried me there.

xoxo

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Spring is upon us!

5/3/2012

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Spring.  That word means only one thing, FISHING SEASON has arrived!  I can't believe I have not fished since we took the icehut off the lake Feb 29th.  Pickeral season opens NEXT weekend.  You know what I will be doing!
Schwammyville has been going well.  On and off days.  I have come to the realization that this is a lifetime thing.  Kinda sad.  I was hoping cyberknife would have done its thing and that it would all be behind me.  Not.  I am left with many symptoms.  Sometimes they are present and sometimes they are not.  Nothing I certainly can't live with.  Trust me, I still feel very fortunate that I am at the stage that I am at.
Lately, the only thing going on is... pain when I swallow if my neck is positioned a certain way.  I had numbness on my face and head yesterday but that was the first time in weeks!  That's about it right now.  Oh, and my voice sucks.  Comes and goes, but mostly it goes.. lol
So when you look at my issues, they are nothing to complain about.  I just like to keep you updated as to where I am at this stage. 
If you ever have any questions, always feel free to email me from the contacts page.  Don't forget to leave an email that I can contact you back if you want me to.  
See you on the lake! :)
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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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