Vagal Schwannoma
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Heard from the Oncologist

1/22/2011

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Glad to report I finally heard from the oncologist regarding what's going on with my hair and stuff.  As previously stated, they were not going through the top of my head with the radiation as I was concerned about that.  He did in fact go through the top cause he said the tumour was so large it was up into mt skull base and had to be attacked that way.  He said he had to keep the radiation as far away from my brain stem and mucous membrane.  That explains the headaches, vomitting and hair loss patches.  I would have liked to know this from the beginning. 
I was happy tho that he called and let me know what I already knew.
Anyway, "The Good Wife".. watch it!  Worth the couch time.  It is such an amazing show on Tues nights and every time the end of the shows comes about, I'm ticked off.  I want more.  Love those shows that make you want more!
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The shows that I watch...

1/20/2011

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Seeing that I am pretty much level with my life once again and have no changes, there is nothing to discuss regarding my health yet, so I'll stick with other topics in between.
I know this diary has nothing to do with American Idol, but I own it and I can write what I want.. :p
It rocked last night!  That Steve guy is just a doll.  He is has a magnetic personality that you can't wait to see him on camera and see what he says.  Jennifer is amazing and just a sweetheart.  Gorgeous as always.  She can't seem to say NO but I think she will overcome that in time.  I truly like the change so far with the new judges.  Randy seems to have little control over the panel, it's Steve running the show with Jennifer.  On again tonight so I know where I'll be.
Even Carrie Underwood, I KNEW she would win right from the moment she stepped onto the audition stage the first day.  I said "She is going to be the next American Idol!"  She is a true fairytale princess story. 
The Good Wife,, now here is one awesome show on t.v.  I'll fill you in next writings..
Have a great Thursday!  15 mins till I have to be at my first client, late as usual.  Procrastination comes to mind when I think of me.  I'm a professional at it.
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Feeling so much better

1/12/2011

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Even tho this week has been so darn COLD, it's been a far better week.
Definately not as painful and I have much more energy this week.  :)  Yeah, for me!
I have not heard anything from my oncologist yet regarding the hair loss.  I did leave a message Dec 22 for them to call me with regards to it.  Nothing.  Hummm. 
11:45 pm and it's bedtime for me.  I'm off and running as I have a busy day tomorrow. 
Hump day is over, hope you all enjoyed the first of your week, now it's almost Friday!!!!


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c-o-l-d

1/9/2011

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Very very cold outside!  I'm one of those miserables when I go outside and it's cold.  I grumble to myself lol
The weekend is over but it was a fantastic weekend at that!  Got lots done in the social as well as organizational areas.  I am glad I am not working tomorrow as I can get my taxes done. 
I made chili today and it was fantastic! YUMMY!  I always love it tho the next day so tomorrow will be better. 
Getting uncomfortable (sore) more and more lately with I'm thinking is swelling or something going on but still trudging along.  I have amazing support from Naz and also my friends and customers.  I look so forward to June when the next MRI comes around to see what the radiation did. 
:)
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Very tight and sore in my neck

1/3/2011

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hummm, I have a very tight feeling in my side of my head and neck.  It hurts too when I swallow and move my head around.  My ear on the affected side hurts too.  Kinda like before the treatment, but I sorta understand why this is happening.  I'm guessing cause there is swelling going on.
I have been babying myself lately, drinking only water or milk and not overusing my voice.  Gonna keep it that way for a while and see if it gets any better.  I didn't even over do it at New Years.  I do also understand that there will be different symptoms appearing as the days go along.
Was a great holiday with the family!!!  I will post a link to some pictures :)
The snow almost all melted with the rain but at least for New Years up here it stayed nice outside.  Nice enough to have a snowball fight at the outside fire!!! :)
Happy New Year!  
 
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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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