Vagal Schwannoma
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pms.. lol

3/31/2011

1 Comment

 
OK, I'll be honest here, my moods freak for one day.  There ya have it.  I read the previous post below and thought to myself, "Holy whiner!"  Thing is, I never knew it then, but I know it now... pms.  I'm sure I could go back month by month and it would be pretty consitent.  I actually had an entire year of postings on here but I removed them as some were too personal... lol (like this one isn't?)
I was told with C.K. treatment that some symptoms will never go away.  Damage done is damage done.  Hence I still get some of my symptoms with breathing and such.  BUT, one symptom that did not come back is that choking feeling.  The feeling that someone has me against a wall and is choking me and slowly cutting off my airway, eyes bulging and tearing.  That was me every night towards the end before I got my radiation.  That is gone!!!!!!! :)  So, for that reason, I feel my tumour has infact shrunk.
I am now late for my 9 am appointment.  She's a great customer of mine and knows of my procrastination lifestyle lol.  I on the other hand just consider it "finding other things to do instead of the thing I am supposed to be doing".
Have a great weekend ahead!!!!   
1 Comment

Tragically Hip - Wooo Hoooo!

3/22/2011

2 Comments

 
How excited am I ? 
Tragically Hip is coming to Bobcaygeon!  I'll be there!  It'll drive us all nuts when they sing the "Bobcaygeon" song.  Anyway, that's still 3 months away.  It'll be 4 days after my visit with my neurologist/oncologist.  Where I find out if this radiation is even doing it's dirty deed on the tumour.  Maybe I'll need a good night out when I find out that yucky news.  Maybe I'll be celebrating that night out when I find out that good news! 
It's been a rough couple of weeks for me.  Lots of symptoms returning.  Lots of fatigue.  I took yesterday and today off of work (sort of from the 4 day weekend I self incurred :) )  Anyway, today I did all my paperwork and filing.  Came across a paper explaining the reaction from Head Radiation.  WoW, I could have wrote it myself!  Hair loss at 2 -3 weeks post.. ME!  Fatigue at 6-12 weeks post.. ME!  Swelling and soreness at 3-6 months post.. ME!
Let's me know I'm right on track to feeling crappy.  lol
The rainbow at the end of this tunnel is a dead tumour and a shrunken one too!  Come on June!
Still semi disappointed with the hospital in that they Zap your brain, send you home and that's it.  Nothing.  No, "How are you?", No, "Just checking up on you, anything we need to discuss?"  anyway... I know I'm not their only client, but I sure as hell am one of the first ones to get Cyberknife and especially on a Vagal Schwannoma.  (One of the first... get that?  JUST incase I am not lol)
btw.. American Idol ROCKS!  Go James!!!!!
2 Comments

A tumour is the least of my worries...

3/15/2011

1 Comment

 
Must say, I feel very fortunate to have a tumour.  I am talking, walking, living and breathing.  I have 5 healthy children.  A wonderful boyfriend.  A job I love.  There is nothing more that I need.  When I see everything going on in this world as it is,,, I'll take my tumour.
I pray for all those in Japan.  I pray for all the families associated with those affected by these disasters.  Ok, maybe I don't actually pray per say.  But I think about them, I wish for hope, I cry when I see any footage and I wish for a miracle. 
1 Comment

    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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