Vagal Schwannoma
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Tragically Hip - Wooo Hoooo!

3/22/2011

2 Comments

 
How excited am I ? 
Tragically Hip is coming to Bobcaygeon!  I'll be there!  It'll drive us all nuts when they sing the "Bobcaygeon" song.  Anyway, that's still 3 months away.  It'll be 4 days after my visit with my neurologist/oncologist.  Where I find out if this radiation is even doing it's dirty deed on the tumour.  Maybe I'll need a good night out when I find out that yucky news.  Maybe I'll be celebrating that night out when I find out that good news! 
It's been a rough couple of weeks for me.  Lots of symptoms returning.  Lots of fatigue.  I took yesterday and today off of work (sort of from the 4 day weekend I self incurred :) )  Anyway, today I did all my paperwork and filing.  Came across a paper explaining the reaction from Head Radiation.  WoW, I could have wrote it myself!  Hair loss at 2 -3 weeks post.. ME!  Fatigue at 6-12 weeks post.. ME!  Swelling and soreness at 3-6 months post.. ME!
Let's me know I'm right on track to feeling crappy.  lol
The rainbow at the end of this tunnel is a dead tumour and a shrunken one too!  Come on June!
Still semi disappointed with the hospital in that they Zap your brain, send you home and that's it.  Nothing.  No, "How are you?", No, "Just checking up on you, anything we need to discuss?"  anyway... I know I'm not their only client, but I sure as hell am one of the first ones to get Cyberknife and especially on a Vagal Schwannoma.  (One of the first... get that?  JUST incase I am not lol)
btw.. American Idol ROCKS!  Go James!!!!!
2 Comments
Jen Hartmann
3/25/2011 09:37:55 am

Stay strong Rhonda. I know its going to be a long few months. You certainly have the right spirit and attitude. Am praying technology is there to match!

Reply
South Ogden swingers link
10/4/2013 12:33:25 am

Great blog, love the template.

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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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