Vagal Schwannoma
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Nothing to do with my tumour..

3/26/2015

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This has absolutely nothing to do with my site here... but I have to share because something tonight hit me.  A song, by Miranda Lambert.  "Get Over You".. it is a song Blake Shelton wrote about his brother who passed away.  His brother was killed in a tragic car accident.  
My brother as well passed away at the age of 9.  I was about 5 yrs old so didn't know what was going on.  I was sheltered from everything.  All I know is my brother no longer was around or talked about but I did not know why.
It was not until I was 12 yrs old and at a funeral for my grandfather that I saw my brothers grave.  It was a very sad, very slap in the face, very humbling experience.  I fell to my knees.  A moment that I will never get over or forget.
The song, "Get over you" is so emotional for me... as well as a certain line in the song.."It really sinks in, you know, when I see it in stone"... that is the line that gets me everytime.  As I did not realize my brother Robbie had passed away until that moment.  
I had to share because some things need to let go.... xo


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Wow, it's been a while

3/16/2015

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Wow, it's been a while since I have posted!  That is a good thing obviously because I usually post when I have junk going on and need to vent ect.
Not this time, this time it is only about ... nothing.
My health has been very good in fact!  I seriously have had no real issues from my schwammie for a while now.
Can't say this for many other vagal schwannoma tumour sufferers.  They are facing daily head/neck pain, swallowing difficulties, palsey of some facial muscles, headaches, ect.... 
There have been the odd lucky few and for that I am very thankful!  But for a general rule, all I can say is I am so glad I did not choose surgery.  Regardless of the outcome from the radiation, my quality of life is amazing.  What I mean by that is my post radiation symptoms are so few.  I have had some issues over the past few years, and when they occur, I vent.  But I feel very lucky to be where I am today.  
Unlike surgery, I am still stuck with the tumour in me.  That was the hardest thing to accept.  As I have stated and most of us tumour people say is... I WANT THIS THING OUT OF ME!  Nothing would have pleased me more.  I can still feel it at times causing resistance to surround areas.  Especially when I get a cold, the area swells around it so there is pressure.  But, that is all I am contending with so I can handle that much.
I am glad to get over January because to think of it, it was an awful month!  Seemed like there were so many people I knew passing away or someone I knew had a close one pass away.  It was really getting me down as nothing was seeming bright.  
Now it is March and I had already forgot about the first few weeks of this year.  
Speaking of forgetting things... that is something I have to deal with on a daily basis!  My memory.  Doesn't get any better.  I am dealing with two reasons why this could be such a problem.  Firstly, radiation on the brain can cause memory issues and early onset of Alzheimers.  Yeah yeah,, I'm actually thinking of getting checked.  The second thing would be menopause... that causes memory issues.  So I am double whammed for memory problems.  

This past weekend we went to a St. Pattys euchre party.  Was a great time!  I'll post our pic as we decked out in green.  After all, I am a true blue Irish lass!  :)  
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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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