More and more people are joining the facebook site for schwannomas of the head and neck. It used to be for schwannomas of the vagus nerve. I changed that since doctors usually do not have a 100% diagnosis, I want everyone to feel welcome where ever your tumour is.
Seems that surgery is the go to treatment. Reconsider and join the facebook site before you decide on any one treatment. :) There are 192 of us on there that have been through what you are going through who have had surgery, radiation, herbal or watch and wait. Talk to our support group before you decide on any one treatment. :)
Oh,,, and by the way. 2 1/2 weeks until the big day. People keep telling me I am so lucky to be marrying Naz. Makes me smile every day when I hear that. I know I am lucky. But if he is around, I roll my eyes as if to say,, whatever! lol
To be honest.... He has been my rock. Even after everything we have been through with my tumour and I will say, he has experienced everything as well. He has not left me alone once. Naz has attended every doctor appt. Stayed with me during my radiation. Goes to bed massaging my neck and head to alleviate the pressure. Emails me every single morning when he gets to work... in appreciation of our previous day and what it meant to him. I have 8 yrs of morning emails.... of encouragement and compliments.
So here's the thing. When people tell me how lucky I am,, I know this. Marrying him is not about keeping him around. He's here to stay anyway. It's about solidifying our family. My 3 boys and his two girls. Us as step parents. Creating a husband and a wife with step kids team. So when people keep asking me why I am getting married now, after 8 yrs. It is because I have always wanted to be married to him. When people ask why we are not engaged first. Why waste the money of an engagement when in reality, we have been engaged for 8 yrs. I knew 8 yrs ago we would one day be married...... the day is 2 1/2 weeks away. xo
Seems that surgery is the go to treatment. Reconsider and join the facebook site before you decide on any one treatment. :) There are 192 of us on there that have been through what you are going through who have had surgery, radiation, herbal or watch and wait. Talk to our support group before you decide on any one treatment. :)
Oh,,, and by the way. 2 1/2 weeks until the big day. People keep telling me I am so lucky to be marrying Naz. Makes me smile every day when I hear that. I know I am lucky. But if he is around, I roll my eyes as if to say,, whatever! lol
To be honest.... He has been my rock. Even after everything we have been through with my tumour and I will say, he has experienced everything as well. He has not left me alone once. Naz has attended every doctor appt. Stayed with me during my radiation. Goes to bed massaging my neck and head to alleviate the pressure. Emails me every single morning when he gets to work... in appreciation of our previous day and what it meant to him. I have 8 yrs of morning emails.... of encouragement and compliments.
So here's the thing. When people tell me how lucky I am,, I know this. Marrying him is not about keeping him around. He's here to stay anyway. It's about solidifying our family. My 3 boys and his two girls. Us as step parents. Creating a husband and a wife with step kids team. So when people keep asking me why I am getting married now, after 8 yrs. It is because I have always wanted to be married to him. When people ask why we are not engaged first. Why waste the money of an engagement when in reality, we have been engaged for 8 yrs. I knew 8 yrs ago we would one day be married...... the day is 2 1/2 weeks away. xo
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