Vagal Schwannoma
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MRI Results are in :)

2/12/2014

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Great news!!!  The tumour has shrunk even more :)  Seems it is half its size from 3 yrs ago when I first had radiation.  It was 7.1 cm X 4.1 cm then... now it is 3.6 cm X 1.5 cm.  :)
How can anyone say that radiation is not the best option to take?  My motto has always been "quality of life over quantity of life!"
People get a brain tumour and immediately think.. GOTTA HAVE THIS THING OUT.  Trust me, I felt that too.  I wanted to cut it out myself.  I would look in the mirror and only see ugly.  I would see the reflection being one of a distorted face with a monster on one side.  Once I realized the morbidity of nerve function from surgery, I knew I would not choose that.  Yes there is a chance the tumour could turn malignant over time, but as I say, "Quality of life over Quantity" :)  Plus, you have a better chance dying in a car crash then it turning malignant,,, do you never drive because you may crash???  Think about it.
If your doctor says your tumour is too big to do radiation with cyberknife then show him the two MRI reports below and tell him/her to think again. 
MRI result from 2014 below:
Compare those results to my MRI (shown below) from 3 yrs ago in 2010 before radiation :)
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February 06th, 2014

2/6/2014

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The good news is: there are new members joining every week to the facebook site for head and neck schwannomas.  
Bad news is: there are new members joining every week to the facebook site for head and neck schwannomas.

Get what I mean?  It's good they found us but it is bad they have one in the first place.  But what better place to be but in Schwammie-Ville on facebook!  Great bunch of members who have been thru it, going thru it, starting it or are there as supporters.

I am thankful for this community and know that since this is a life long journey we will always have one another.  No one can know what we are speaking of without experiencing it.  Even our own doctors tell us these symptoms are not related but,,, when we put all our symptoms together, we are all one of the same.  

Right now the surgery vs. cyberknife debate is going.  My personal opinion is that most doctors are so un-informed regarding either treatment.  If you are a doctor reading this post (prolly not lol) then please have the guts to admit you may not know everything and seek all the options there are available for your patient.  Seek doctors who have much experience with this and ask questions, offer referrals if you are new to it.  Email me privately and I can give you doctors names who are well experienced with vagal schwannomas.  Just sayin... :)




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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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