Vagal Schwannoma
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Long live CyberKnife!

6/24/2011

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So far so good.  Went to Ottawa for my MRI and appt with oncologist.  Say's the results are "favourable".  He can't say dead.  But when I asked him he said that it does infact look dead but he has to say it as "favourable".  Still has some little halo around the outside of it.  It has not shrunk tho and that is ok.  I was still getting symptoms because of the fact it is still 3 inches up there in my little head.  With such an amazing large brain to contend with for space, there has to be some issues along the way.
Very amazing story of a 12 yr old boy that had an operation on his vagal schwannoma.  To have a tumour like this so young, I think he is the youngest that I have come in contact with so far.  His mom just joined the vagal schwannoma Facebook page.  Wow, I could not actually comprehend such a thing happening to my son.  Such a thing happening to such a young boy.  It tore me up.  Yet, I am also calmed by the fact he is so young and strong he will bounce back so well.  His mom must be so brave.  Kudos to the family and they will be in my thoughts every single hour of the day.
I am attending the Tragically Hip concert here in Bobcaygeon.  Over 25,000 people coming from everywhere for this outdoor in a field concert.  It will be just CRAZY!  We have a 70 seater bus rented coming to the house to pick us up and it will be full!  Will be insane.  If you don't hear from me ever again it will mean I am a crushed concert goer statistic.  lol

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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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