Vagal Schwannoma
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WoW, 4 months since last post

10/6/2011

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Wowsers, can't believe how time flies!  It has been so long since my last post.  My hair is a little longer.  I have been growing my hair since I had those bald spots from the radiation.  Started with trying to cover over the bald areas with longer hair and clipping it back over them to cover them.  lol  Now, it's gotten long enough that I don't want to cut it.  It has grown to be quite wavey and curley.  Longest I have had since I was 12 yrs old.  Ok, enough about the hair. 
What else is new.... Autumn is here, and it is the most beaurtiful time of the year.  Especially in cottage country where the trees line the lakes with so many different colours.  The pickeral are biting and so are the muskie.  Beautiful!  :)
I can't tell you enough how much CK has been one of the best decisions I have ever made.  The more I read and learn about the different methods to treat the vagal schwammy, the more I feel I did the right thing.  No one ever really knows of course until it's done.  Even then, there are the future results and complications to deal with.  But, so far so good.  I have an appt in Dec but I think I have to cancel that because I will be away on a trip.  Reschedule until January.  It is such a long drive for an MRI and the results.  But I also know it is with the best and most knowledgable so worth the drive.  3 1/2 hours... yeah.  :)
Everything has been going very well.  I do get my up and down days.  My voice is still a little raspy and some days when I over use it (which is all the time), it is down right hoarse.  I have lately encountered pins/needles and numbness on the side of the tumour from my skull down to my shoulder.  Also a high pitch ringing in my ear as well.  Have been reading about it and it is a trimignal nerve thing.  Better than the head shocks that come with it sometimes!  :)
Other than that, I am pretty symptom free.  :)  So far.... :p
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    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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