Vagal Schwannoma
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The closer it gets...

5/17/2011

2 Comments

 
The closer June 10th comes, the more nervous I get.  I can't wait to get this all over and find out what my little schwammy may be up to.  I also am nervous to think it may not be shrinking at all or dying.  In reality, I feel it is actually growing in size.  I have very much discomfort, pain, throbbing ect in the area.  90% of my day has me feeling it and thinking about it.  I'm impossible to figure out to many around me.  Whan asked how I am, I usually reply "Oh great"... but my face does not say that.
I hope this is all in my head and only my apprehensiveness is making this more difficult for me.
Time will tell.......
2 Comments
H.
5/18/2011 03:08:27 pm

I got diagnosed on May 17th when you wrote this...right in the midst of my birthday celebration...not a fun moment to get that call! So I'm just beginning my journey to seek answers...and will write you...have you heard of proton therapy and anyone having that done for this kind of tumor?

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Rhonda edwards link
7/4/2012 10:58:55 pm

I have heard of proton therapy. Infact, some of the members on my vagal schwannoma facebook site have discussed this.
I only JUST found this comment today (July 2012). I thought I would have received a notice I had one.
I hope all is well with you. Please let me know your diagnosis and what you have chosen as your treatment.
Rhonda :)

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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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