Vagal Schwannoma
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Feeling better by last night

2/19/2011

3 Comments

 
The pain has passed.  Just some pressure and muffling is left.  Slight pinging in my ear still. 
I will admit, tomorrow I will feel much worse.  Tonight is "Whitehouse" night and a van load of us are going.  I already know I will not be feeling well tomorrow. lol
Picked up our car yesterday.  Mazda 3.  Woo hoooo!  Looks and drives sweet. 
I am very bothered by one thing.  There are very sweet people who I have met through these pages.  Some are in the process of getting surgery on their V.S.  I am not sure it is the right thing.  All I can do is support and share my own experience.  I am not sure why doctors are so fast at removing these tumours if the patient is still ok.  Blows me away.  For a doctor to sit and say "when you awake after surgery, you will not be able to talk, you will be on a feeding tube to eat, you will not be able to swallow, ect ect... ".. seriously????  Sign me up?????  But some people do.  I would not budge until I knew for sure I was on my last leg to have anything ripped out of me.  I know some people just like the idea of a tumour being taken out of their bodies.  Trust me, when I first found out about it.  I wanted it out.  I imagined it as a big, ugly tumour actually on the outside of my head.  I understand the need to want it out.  I also understand quality of life is very important.  If it is necessary to have it out,, go for it.  If it is not, then i'd say, keep it and treat it differently.  I'm not a doctor tho.  (No duh!!!) 
I do support what anyone wants to do tho, cause there is no saying that the decision I chose is the right one either.  It's a matter of belief. 
I'll have a dance for ya all tonight!!!!!! 

3 Comments
Jen Hartmann
3/2/2011 12:54:28 am

Hi Rhonda, I can so appreciate your decision to follow the path you have and your concern about those of us choosing to remove it. But there is sooooo much more to the decision than just wanting it out...and that includes some very carefully balanced options that involve what we might face today...vs down the road. And what our chances for full recovery are now...vs down that longer road. For some of us it even includes the hope to start a family and the risk that pregnancy hormones can cause the tumor to grow. It also means knowing for sure it's benign vs. malignant. It means a cure vs. lifelong monitoring. I know I'm speaking to the choir and love that we have this community of people that support each other and can uniquely understand the weight of these decisions. You have been an inspiration to me since my diagnosis and will continue to be during my recovery! God Bless!!

Reply
Rhonda
3/2/2011 07:29:25 pm

Thank you for telling the other side Jen. I know you are going for surgery soon and as I have mentioned in many posts, I support both sides as there is no right or wrong. There is only what one believes and feels within themselves that is the right decision.
I will keep posted on your journey as well through your website..
Thinking of you always.. xo

Reply
fordenisse link
10/23/2013 03:16:35 pm

Hello mate, great blog.

Reply



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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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