Vagal Schwannoma
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Debulking these tumours

4/6/2011

2 Comments

 
Well, ( "tumors" for my American friends haha)
Debulking the tumours means removing the tumours.  Some choose this option.  Seems like a great idea!  To some it is (although I have not met any long term ones yet).  To some it is not. 
What I understand about it ,, and I am no doctor, but from what I understand they cut open the outer membrane of the tumour.  They pop out the tumour after carefully resecting it from the 10th cranial nerve.  To keep the nerve intact they must leave a very small piece of the tumour or else the 10th nerve gets comprimised.  They they resew up that open empty sac. 
Here is the part that I have read about, the darn thing can grow back.  Bigger, faster and within less time.  I have not only read about it, but I have talked to 3 different people who have chose this route and it has grown back even larger within 3-5 yrs.  Two different people had it happen twice to them.  I am only bringing this up to anyone thinking of having it removed but leaving the vagus nerve intact.  Get all the facts and statistics.  Not sure how many grow back against how many don't grow back.  I have only talked to 3 that have.  I have talked to others who had the 10th nerve actaully resected to make sure the entire tumour is removed.  This of course creates problems with voice, swallowing ect...
You can always have raditaion to what ever they leave behind then it won't grow back because it's dead.  The one patient had that done when she went under for the 3rd time. 
Anyway,,, find out every option, get the facts, get the statistics, find the right ENT/Neurologist/Oncologist/Surgeon/Radiologist and do your thing :) (only my very very humble opinion of course)
2 Comments
Renee link
8/3/2011 08:42:41 am

Hey I just found this site this morning and I just had surgery to remove a medium to large vagale on my right side of my neck, have a long road ahead of me. Right vocal cord, right side of tongue is tramatiezed and I have researched this condition pretty thoughly. The last MRI Radiology report stated that I had bilateral Caroid body tumors but the first MRI stated I had a large valage tumor. It does not matter now. I will just get thought this. I just wanted you to know that I love your creativity with the "My Schwannona" I think about doing something similar with "By Golly Miss Molly I've got a Vagale". But I just not as that creative and when I read the lyric for the song, well it will take some doing. I will work on it. It is interesting that these type of tumors have fall under different catogories. Good luck and if all else keep using Humor.

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Thots Indiana link
2/15/2021 03:35:11 am

Great ppost thankyou

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    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

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    Needed some humour here! 

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