Vagal Schwannomas....
so you may have one or someone you know has one
FILL OUT THIS SURVEY... WE ARE FINALLY BEING HEARD AND RECOGNIZED :)
cLICK ON THIS LINK FOR anonymous SURVEY: redcap.link/schwannoma
read more about the survey here: https://www.vagalschwannoma.com/survey.html
*Don't have surgery until you read this info on I.E.! Click on link below.
http://www.vagalschwannoma.com/newer-info.html
View pictures of my journey at the bottom of this page... scroll down.
I'll start by introducing myself. My name is Rhonda Edwards and I have been diagnosed with a Vagal Schwannoma (10th cranial nerve). However you ended up here, please leave me a message on the CONTACT page so I may know how you have been affected by this type of tumour. Whether you are a patient, caregiver or friend... let me know! Don't forget to leave your return email so I may contact YOU, if you wish :)
Ok, to start with, I am not a doctor. I have no medical background what so ever (ok ok, I do have pharmacology). This is an information site only and most of this information is either personal experiences or loads of info I found on the internet.
<--- YUP, that's my new little buddy there, but never mind that, check out that wonderful brain!!! lol
I have a facebook Vagal Schwannoma page too!! https://www.facebook.com/groups/vagalschwannoma/
Come check us out and join in!!!
The main reason for this site is to bring awareness to 10th cranial schwannomas and help those who have them, to BETTER understand them. My tumour is 5.60 cm X 4 cm (July 2009) which is considered very large and inoperable. Those measurements were LAST years, this new MRI (Feb 2010) shows a growth. Go figure; 7.1 cm X 4 cm. A recent MRI (Nov. 2010) showed another 10% growth to the tumour. Must be the wine! :)
I am very new to all of this so you must bare with me as this site grows and matures.
When first diagnosed I felt very alone. I felt like there was no one there with information or help. I soon started to delve into the internet and came up with many sites which I have mentioned on the "Other Useful Sites" area.
Please feel free to write and add to this site. Any amount of information will help others. Whether you are a Pro by now (Rick) or a Newbie (myself)... any type of support will be much appreciated by myself and others. Also, if you find false information please email me and I can surely change it.
You can always email me at: ilikepaws (at) hotmail (dot) com
Ok, to start with, I am not a doctor. I have no medical background what so ever (ok ok, I do have pharmacology). This is an information site only and most of this information is either personal experiences or loads of info I found on the internet.
<--- YUP, that's my new little buddy there, but never mind that, check out that wonderful brain!!! lol
I have a facebook Vagal Schwannoma page too!! https://www.facebook.com/groups/vagalschwannoma/
Come check us out and join in!!!
The main reason for this site is to bring awareness to 10th cranial schwannomas and help those who have them, to BETTER understand them. My tumour is 5.60 cm X 4 cm (July 2009) which is considered very large and inoperable. Those measurements were LAST years, this new MRI (Feb 2010) shows a growth. Go figure; 7.1 cm X 4 cm. A recent MRI (Nov. 2010) showed another 10% growth to the tumour. Must be the wine! :)
I am very new to all of this so you must bare with me as this site grows and matures.
When first diagnosed I felt very alone. I felt like there was no one there with information or help. I soon started to delve into the internet and came up with many sites which I have mentioned on the "Other Useful Sites" area.
Please feel free to write and add to this site. Any amount of information will help others. Whether you are a Pro by now (Rick) or a Newbie (myself)... any type of support will be much appreciated by myself and others. Also, if you find false information please email me and I can surely change it.
You can always email me at: ilikepaws (at) hotmail (dot) com