Vagal Schwannoma
  • Home
  • SURVEY
  • What is it?
  • Symptoms
  • Treatment Options
  • Vocal Outcomes from Surgery
  • Mapping us out!
  • Looking for a Doctor?
  • Questionnaire
  • Share your story
  • My Journey Diary
  • WebSites
  • Newer Info
  • Contact
  • Story from Bob
  • SURVEY

Yikes!

12/11/2010

4 Comments

 
Started to feel very sore area tonight so thought that I better start my medications.  WELL!!!  Took both as directed and within 10 minutes, my stomach was punching it back out of me, including my toenails.  Not sure which med my stomach does not agree with there, but it was pretty vicious and fast and continuous.
Anyway, guess I'll be calling on Monday about that,  lol
I have had nausea all day Friday as well and had to pull over serveral times during my grooming day.  If I don't lose weight after all this, I WILL BE VERY DISAPPOINTED!!  hahahaha
Watched an amazing movie tonight "Bend it like Beckham".  I really enjoyed it.
Guess I'm ok to go to bed now, so.. night night...
4 Comments

Discomfort has decreased

12/11/2010

0 Comments

 
Feeling better just lately.  Still waiting for the after math (side effects) to occur which I have been told about.  If it doesn't, I'll be just as content! :)
Had a full week of grooming and still find my energy level both above my average compared over the past year.  That's a good thing!
Yawn... it's actually 5:30 a.m. right now and only went to bed 2 hours ago.  Awoke and could not sleep so here I am blogging until my mind feels tired,, which it already is. :)
night, night....

0 Comments

Bought the dog a bone

12/8/2010

1 Comment

 
Bought Kody a bone and some other yum yums at "Pawz N Clawz" here in Bobcaygeon on Bolton Street.  Little plug there, but they ARE wonderful!  Now maybe he'll not be so bored when I leave him.
Had a busy day grooming and then rested it out for the evening.  Was pretty sweet just feeling nice and comfy for once.  I just think that "Modern Family" is sooooooooooo FUNNY!  That's the one thing that is not even close to being back to normal.  My laughing, I just can't and don't have the strength to do so, so it's bitter sweet watching Modern Family.  SO funny, yet it hurts to watch  lol
I am assuming in 3-5 days my throat will get raw inside.  That's the consensus on other C.K.'ers in the head/neck region who have had it done. 
Counting down!  FIVE!!!! :)
1 Comment

It is DARN cold outside!

12/8/2010

1 Comment

 
Well, other than talking about my throat which feels like "world was 2" has occured in, I'll keep this easy going. :)
Picked up my mounds of rince/swallow stuff for my mouth for Ulcers and Thrush.  Yum.. NOT!  I do have some things pop up that concern me but then, you really can't zap at a 3 inch tumour and not expect some side effects.
In all, I really am in my own mindset.  Not wanting to talk.  Not wanting to be talked at.  (ok, enough of the funny stuff, I KNOW I'm always in my own mindset)...
I have no real interest in anything particularly except how to get to feeling comfortable.  Which way shall I place my head, when can I lay down so I don't feel sick and dizzy, can I talk or will it hurt when I do. 
lol  when I actually read that stuff I wrote, you'd think I should be happy to only have those worries in my mind and actually I am.  I should feel lucky to only have these problems.  So, LUCKY ME! :)
On a sillier note, my dog is bored lately.  He is driving me nuts!  I get home from work and he has every single slipper and shoe in the house all piled in a heap in the middle of the kitchen or living room floor.  Do I know what to do about it?  Sure I do, I'm an obedience trainer.  Something like this is called "maintenance".. keeping him safe from the stuff.  He is such a goofy dog too... cute as all heck and goofy.  Decided that I will tie a leash to the front hall area and he only has that amount of room to move till I get home.  I could cage him, but that would take up room in the house.  He's just bored when we are gone.  Gave him a bone to chew also, but I think he feels retrieving shoes is far more fun!
Off to work again,
1 Comment

No so over just yet..

12/6/2010

2 Comments

 
As I have found out, the worst is yet to come.  Being that the radiation still does it's job for another 2 weeks, my symptoms will get worse.  They already are. 
Imagine me not wanting to talk.. haha, but I don't.
It's all part of the killing off of the tumour and the healing process for me I guess.  I still get alot of nausea so the only problem that occurs with that is when I am grooming at someone's house and suddenly it comes upon me.  hummmmm... guess I'll face that, when or if it comes.
All I can say is I am looking forward to 6 months from now when I have my next MRI to see if the radiation has begun to kill it and stop it from growing.
Do my hair, put on my makeup and face the day... with a smile.  That's the best I can do for myself right now
2 Comments

The end of chapter two

12/4/2010

0 Comments

 
With my new medication for swelling in my brain and the nausea to counteract all that, I was back up and running!  Ate like a queen!!! 
Friday I was not apprehensive at all.  Infact, I was just happy we got all our Christmas shopping done and I recieved an early present myself (a beautiful compact camera).
Friday went off without a hitch except for the doctor feeling pretty bad that he was not prepared for my reaction to the radiation and actually thought it would not happen to me.  He appologized and then prescribed me more meds explaining:
It is not the actual days of radiation I just recieved that will do much to the tumour now, it is the next 2 weeks that the radiation kicks butt.  In otherwords, expect to feel like crap for another 2 weeks as the radiation does it's job.  He prescribed (for the next 6 weeks) some stuff for my throat as it will get VERY sore and burned inside and I will have difficulty talking... hummmm LOLOLOL
He also said that I will get thrush in my throat and to eat only soft foods and to take this other kind of medication he also prescribed for 6 weeks.  Sounds all good to me!!  A break to anyone who has to hear me talk and a break to my body to not eat so much food.  :)  Hey! I may even lose some!!!
Anyway, in 6 months time I go back for a follow up to see just where this tumour is going and if we have killed any of it.  Takes 2-3 yrs to see the full capacity of the radiation.  May even shrink the little guy a bit. 
Thanks to Naz, he's keeping me updated on my meds and making me take them when I'm supposed to.  Huge turn around as I'm always the one after him to have him take better care of himself. :)  Gotta LUV him!
He doesn't have to remind me much about the anti-nausea, that's a given as my body certainly lets me know!!!
I'll keep this blog updated with my progression until it gets toooo boring and all the days begin to sound the same

0 Comments

HOME!

12/3/2010

0 Comments

 
I will post the rest of my Friday and trip home either later tonight or tomorrow.  But I just want to say that I have appreciated all my comments, emails and text messages!!!  Thank you to all!
I am feeling GREAT today! 
Here is a quick humour link of pictures I had with my cuddly bear my friend Sue and Kathleen gave me :)  He's doing cyberknife too! lol
http://www.facebook.com/album.php?aid=584481&id=527085532&l=f84f06879c
0 Comments

What a beter day 2 so far!

12/2/2010

1 Comment

 
Morning went well!  We did some Christmas shopping and then headed to do my cyberstuff.  I was apprehensive about getting it today because of how sick i was the day before.  The nurse reassured me they would prescribe me meds to counteract what was going on.  The radiation went off without a hitch and i listened to Taylor Swift again.  Even fell asleep again. 
Saw the nurse afterwards and she explained my brain had swelled, putting pressure on that back area that makes you nausiated and throw up.  So they prescribed me steroids for my brain, and nausea meds cause I'll get upset stomach from the steroids.. lol.. and antinausea cause of the radiation.
So I'll all kicked up and ready with meds!  TIME FOR SUPPER, wings and pizza.  Ate it all.  I'm still ok and it's only 7:41 pm, let ya know later what happens. :)
I don't even have bullfrog neck today! OHHH one funny thing, and I'll try posting the picture.  The mask was put on extra tight so i would not move and it left a cagey lines all over my face.  People were staring at me all day afer.  Stuck on me for a while  lolol
No snow here, so Bobcaygeon, MELT before we come home tomorrow!  We may be headed out to see some live music tonight.  Can't keep a healthy girl down!!!!! 
Luv ya all!!!  xoxo
1 Comment

Treatment #1 Done....

12/1/2010

3 Comments

 
Well, I'm done treatment #1.  Two more to go.
Naz and I are thinking, we should have read the radiation pamphlet BEFORE we headed out for supper. 
Radiation was done in 55 mins and i went GREAT.  I even fell asleep during some of in.  Walked out and I could have been doing cartwheels.  We headed for supper at Kelsey's and I wanted the wings but NO WAY, tomorrow night is 1/2 price wings so I'll wait till then for those.  Instead I have the french onion soup, and some yummy spicey pasta meal. 
By now I'm feeling tightness in my neck.  We get back to the lodge and there is a lady who will be visiting to play her guitar.  We head down to the meeting room to hear her.  Missy Burgess http://www.missyburgess.com/  Let me tell you, AMAZING!!  Also had a yummy piece of banana cream pie.
Toward the end I'm feeling my neck swelling and nauseated.  Ohhhh yeahhh,,, I had radiation, lol
Now back to the pamphlet as it states, no large meals, no spicey foods and no sweets.  I killed them all!!!
Eventually it hurt to even try and talk, my throat is now swelled up like a bullfrog and the toilet got all my food right back up. 
I had planned to go out tonight,, NOT.
I had planned to eat the wings tomorrow night,, NOT.
Guess I'll have to actually accept I'm not THAT normal and also, read my pamphlets! lol
Tomorrow will see brighter days... soup and water.
And there is my Naz, my rock... every step of my way. xo
Todays pics can be found on the HOME page
3 Comments
Forward>>

    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

    Picture
    Picture
    Picture
    Picture
    Picture
    Picture
    Picture

    Needed some humour here! 

    Picture
    Picture

    Archives

    April 2019
    October 2016
    August 2016
    December 2015
    July 2015
    March 2015
    October 2014
    September 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    November 2013
    October 2013
    April 2013
    February 2013
    January 2013
    October 2012
    July 2012
    June 2012
    May 2012
    February 2012
    January 2012
    October 2011
    June 2011
    May 2011
    April 2011
    March 2011
    February 2011
    January 2011
    December 2010
    November 2010

    Categories

    All
    Neurilemoma
    Schwannoma
    Vagal
    Vagus

    RSS Feed

Powered by Create your own unique website with customizable templates.