Vagal Schwannoma
  • Home
  • SURVEY
  • What is it?
  • Symptoms
  • Treatment Options
  • Vocal Outcomes from Surgery
  • Mapping us out!
  • Looking for a Doctor?
  • Questionnaire
  • Share your story
  • My Journey Diary
  • WebSites
  • Newer Info
  • Contact
  • Story from Bob
  • SURVEY

Some junk going on...

3/15/2014

0 Comments

 
This week, I have been so busy with work. Over loaded. My body feels it. Beginning of the week I had pain in the area of the tumour. A full feeling along with clenching pain. That disappeared and I was happy but that was very short lived.
It has now been replaced with the infamous dizzy vertigo when I get up from a laying position or from a bent down position. The feeling of actually being thrust to one side because my entire vision and brain are being spun that way. Giving me a feeling of nausea.
It is so true when I say we are all in this world of schwammy-ville on a lifetime membership.
0 Comments

Love the Volunteers

3/14/2014

0 Comments

 
I would like to mention something that most of us take for granted or that we don't even know goes on. The volunteers who drive people to and from their cancer treatments here in Ontario. Sure they get a bit of pay back for their mileage, but that is it. The back and forth time they spend driving people in our communities is priceless and out of their own time away from their own families. 
Thank you to the volunteers in our community, some whom I know because I groom their dogs. For driving in the snow. For driving to Toronto, Belleville, Ottawa... to support those who have no ride for their treatments. Waiting hours until their rider is ready to go home.
Nothing is more of a reality check, then sitting in a cancer clinic with others having handkerchiefs on their heads, oxygen tanks, ect.. young and old. 
These volunteers are there for all of them who need it.
Some of these special people offered to drive me to my Toronto/Ottawa appts on their own time and expense, anytime I needed.  My heart is full because of their caring.
THANK YOU!!! xoxoxoxxoooxoxoxoxo
0 Comments

The "Go To" Doctor

3/13/2014

0 Comments

 
After seeing many outcomes of surgery.  I would like to personally state that there is one doctor I would start with or end with in the USA.  
Dr. James Netterville from Nashville, Tennessee. Vanderbilt University Medical Center.  
http://www.vicc.org/dd/display.php?person=james.netterville
Dr. James Netterville has demonstrated time and again, positive outcomes from surgery as he uses the I.E. method as explained: (here http://www.vagalschwannoma.com/newer-info.html)
I know I have a "Looking for a Doctor" list, and that is for everyone to share their doctors and for newbies to find a doctor.  I keep most information on this website non-judgmental, however, in my own diary here, I can say as I please :)
An added benefit of going to see Dr. Netterville is he lives in Nashville Tenn, and what better excuse to go see guys in cowboy hats... singing country even!  If you're a guy going to see Dr. Netterville, bring your wife/girlfriend along so they can enjoy the "scenery". :)
I am sharing this today as another success story has been shared with me regarding Dr. James Netterville. If you are a newbie, check out the "looking for a doctor" list and find one near you.  

0 Comments

Snow Snow and more Snow

3/9/2014

0 Comments

 
Pretty sick of the snow.  Seems there is no end to our white misery.  On the other hand...
Yesterday was a pretty beautiful day considering it was only 3 'C  (37.4 F for my American friends). 
Naz and I sat on the deck for 3 hours with snow all around us, drinking and enjoying the sunshine! 
It's about appreciating what we have when we get it.
I have heard from 3 more people who have found schwammie-ville.  It is great to be able to be here for those who are new in town :P  
Knowing they are not alone is their first relief.  
Today I heard the best story I have heard in a long time.  A woman who was told to watch and wait.  I love to see doctors not jump into the surgical resection mode the minute they find a schwannoma.  
If you are newly diagnosed, take your time and read as much as you can.  Put a hold on any treatments until you have all the facts.  It is not life threatening and you are not going to die.  There are doctors out there who specialize in schwannomas.  

0 Comments

    Author

    Hi, My name is Rhonda Edwards.  I was diagnosed with an in-operable brain tumour in 2009.  I will blog my journey so follow along and enjoy, share and learn. 
    Below is a pic of my guy (Naz) and me.  Giving credit where credit is due as he carries all my burdens and is my rock!

    Picture
    Picture
    Picture
    Picture
    Picture
    Picture
    Picture

    Needed some humour here! 

    Picture
    Picture

    Archives

    April 2019
    October 2016
    August 2016
    December 2015
    July 2015
    March 2015
    October 2014
    September 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    November 2013
    October 2013
    April 2013
    February 2013
    January 2013
    October 2012
    July 2012
    June 2012
    May 2012
    February 2012
    January 2012
    October 2011
    June 2011
    May 2011
    April 2011
    March 2011
    February 2011
    January 2011
    December 2010
    November 2010

    Categories

    All
    Neurilemoma
    Schwannoma
    Vagal
    Vagus

    RSS Feed

Powered by Create your own unique website with customizable templates.